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Links

Dermatology Patient Support Groups

By alphabetical order

Organisation Language URL adress
Acne UK http://www.m2w3.com/acne/
Albinism   http://www.albinism.org
Alopecia Areata   http://www.naaf.org
American Porphyria Foundation US http://www.porphyriafoundation.com
Congenital Nevi US http://www.nevusnetwork.org
Disfigurement/Portwine Stains   http://www.changingfaces.co.uk
Ectodermal dysplasia US http://www.ectodermaldysplasia.org
http://www.nfed.org
Epidermolysis bullosa   http://www.debra.org.uk
Ehlers-Danlos   http://www.ednf.org
Eczema   http://www.eczema.org
http://nationaleczema.org/home.html
Ichthyosis US http://www.ichthyosis.co.uk
http://www.scalyskin.org
Incontinentia Pigmenti US http://imgen.bcm.tmc.edu/IPIF
Lupus US http://www.lupus.org
Mastocytosis US http://www.mastocytosis.com
Neurofibromatosis US
FR
ES
http://www.ctf.org
http://www.anrfrance.org
http://www.aeenf.com
Proteus Syndrome   http://www.proteus-syndrome.org.uk
Pseudoxanthoma Elasticum   http://www.familyvillage.wisc.edu/lib_pe.htm
http://www.pxe.org
National Psoriasis Foundation US http://www.psoriasis.org/home
Scleroderma UK
US
http://www.sclerodermasociety.co.uk
http://www.scleroderma.com
Tuberous Sclerosis    
Vitiligo   http://www.vitiligosociety.org.uk
http://www.nvfi.org
Xeroderma pigmentosum   http://www.xpsupportgroup.org.uk
http://www.xps.org
UCB-Pharma